26 Miles 4 MND is a fundraising and awareness campaign with the ultimate goal of helping to defeat motor neurone disease.
It was started by two friends – former BBC cameraman and journalist Miles Pilling (who lives with the PLS variant of motor neurone disease) and editorial photographer Cristian Barnett (above).
We aimed to find 26 people affected in different ways by motor neurone disease and to spread and share their stories on Instagram and more recently as a book. Cristian planned to run a marathon to publicise the campaign. Against Miles’s better judgement he was persuaded to be in every photograph alongside the main subjects too – hence the name 26 Miles 4 MND!
We set up a Just Giving page so people could donate to the MND Association and imagined the project would be completed in six months.
Fast forward five years – The Instagram campaign was a great success and in 2019 Cristian and two other of Miles’s friends ran the Hull marathon relay, smashing our £2,600 fundraising target which is now above £4,000.
Cristian and Miles have travelled the length and breadth of England and over the border into Scotland photographing and interviewing people. The 26 unique stories have just been published as a high quality book that would grace anyone’s coffee table. It includes a robotics scientist with ALS who aims to beat MND by becoming a cyborg, eminent scientists with behind the headlines news on MND research, people living with different forms of MND, MND nurses, volunteers, researchers and many of the normally unseen people who spend their time trying to beat this devastating disease and who support the people who live with it.
Buy the book for £15.00 plus £4.50 postage by clicking the PayPal link below.
Alternatively if you’d like to contribute to our Just Giving fund please use the following link
Many thanks to everyone who agreed to be included in the book and to all who have bought copies or contributed donations. Every amount, however large or small, is appreciated.