“26 Miles 4 MND” is a money and awareness raising campaign inspired by friendship, photography, my name “Miles” and the marathon running distance – 26 miles.
The aim is to raise £2,600 (or more) for the Motor Neurone Disease Association and to increase public awareness and knowledge about this terribly cruel illness.
Until very recently I led an an interesting life working for the BBC as a news cameraman and director. However, after being diagnosed with motor neurone disease I was forced to give my career up.
Life for me now is very different. There are benefits – For example I have time to take photographs for pleasure, but my photography is limited to what I can take from the mobility scooter I use because I’ve become so disabled.
There is no cure for MND and no effective treatment. Also, a lot of people still don’t know what MND is. My friend Cristian Barnett and I are fundraising to try and help change that.
A little known fact: In 2012, 1 out of every 232 people who died in England had motor neurone disease.
The man to the right of me here is my close friend the photographer (and runner!) Cristian Barnett. He’s going to photograph 26 people who are affected by MND – from people living with the illness all the way to people researching for a cure. I’m going to interview each person, and I’m also going to be in each of the pictures too (a bit like the one above). From the interviews, there’ll be a written personal “MND story” to accompany each photo.
Near the end of the “26 Miles” project, Cristian will run a marathon for the Motor Neurone Disease Association. During 26 days leading to the marathon, 1 portrait and story from each of the 26 will be published on this “26 Miles” website and across social media too – So, 26 Miles, 26 portraits, 26 personal stories and a 26 mile run: “26 Miles 4 MND.”
We’ve also persuaded celebrities such as Kim Wilde and other public figures to support the “26 Miles” campaign. They’ll be photographed and interviewed just the same as everyone else that we include and you’ll be able to read their stories and see their pictures here too.
Or donate via your mobile phone! – Text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070
Unlike many cancers and other life threatening diseases, there are still no effective treatments for motor neurone disease. Please help us put a stop to this awful situation.
- In 2012, 1 out of every 232 people who died in England had MND.
- MND paralyses and relentlessly weakens sufferers’ muscles.
- Many people with MND can be trapped within bodies that refuse to move, unable to talk but perfectly able to think.
- The average life expectancy for the commonest form of MND is just 3 years from diagnosis.
- 5 people a day die from MND in the UK.
- The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
- The estimated risk in any one person’s lifetime of getting MND is 1 in 400.
Follow our journey –
Cristian and I would love you to join us on our “26 Miles” adventure as we move closer to the marathon run. We’ll be meeting and photographing some amazing, fun and uplifting people on the way that we’d love you to meet as well. To keep up with “behind the scenes” news click on this BLOG link or the one at the top of the page.