Portrait no.19

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19 of 26 Professor Siddharthan Chandran is the MacDonald Professor and Head of Neurology at the University of Edinburgh and director at the Euan MacDonald Centre for Motor Neurone Disease Research. His research combines specialist clinics with laboratory research on human stem cells. “I always advise newly diagnosed people to look at the MND Association website as that’s a very good website. I encourage them to sign up for research studies and I talk to them about research. I do that for various reasons, not least that we need it, but what I’ve learnt from people with the disease and their families is the value of research to the person and their family. Riluzole is the only globally licensed medicine and it is marginally beneficial – giving an extra one, two or three months to a persons lifespan. What everybody wants is something that will profoundly slow MND down. Even by six months or twelve months. Delay time for breathing support, for feeding support. It would be spectacular if we could buy a year! I’m professionally an optimist. I’ve seen great change in my career time in other diseases – MS has undergone a revolution in treatment since I was at medical school. I think MND is ripe for change and it would be terrific to contribute to that. I’m also hopeful because all the people I meet with the disease and all the families are up for promoting and enabling research. They want it. They need it. The least we can do is try and meet their expectations. My ambition, and the reason for coming up to Edinburgh (it wasn’t for the weather) is because Edinburgh has made a claim and has prioritised and continues to make strategic investments in this emerging area of medicine called regenerative medicine. There will come a day when neurologists will not only slow MND down and stop it, but in some instances begin to devise ways that you can restore and give back, to an extent, that which has been lost. I’m a great believer in that. I think it will happen.” . To help the work of the Motor Neurone Disease Association donate via our Just Giving page: https://www.justgiving.com/fundraising/26miles4mnd

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To support the work of the MND Association, donate here – www.justgiving.com/fundraising/26miles4mnd

or text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070 

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