Cristian is out running the Vitality Big Half marathon in London today (Sunday 22nd August). He’s raising even more much needed cash for the MND Association to help defeat the monster called motor neurone disease. We’ve just passed the £5,000 mark on our fundraising. Can you help us take it higher?
If you can, please make Cristian’s efforts worthwhile by donating here. Thank you 🙂
Great news! At this rate in about three weeks all of our books may be sold. Every copy sent into the world is helping raise awareness of motor neurone disease. I hope you’ll agree it’s worth continuing this and to do so we’ll need another print run. So starting from now, ten pounds from each book sold will go towards having more printed. The other five pounds will still go directly to the MND Association. Every book sold creates more awareness and more cash to defeat MND! Thanks everyone who’s bought a copy so far.
At Christmas we had an unexpected donation to help us get more copies of the 26 Miles 4 MND book printed. That has enabled us to get another 50 copies printed which means we are now officially published with a copy on its way to the British Library for cataloguing! We’ve had fantastic feedback from everyone who’s read one of the original 20 copies. You can buy one yourself using the link below.
The book is professionally designed, edited and printed, with photography by the immensely talented Cristian Barnett and has 26 insightful, interesting and often very uplifting interviews with people ranging from a robotics scientist with ALS hoping to become a cyborg to ITV Pride of Britain winner Paula Maguire who began the the Ice Bucket challenge in the UK and personally raised nearly £5million.
Miles was hoping to sell the books in person at “real world” events but Covid-19 has put a stop to that for now. So you can now order a copy online for £15.00 plus £4.50 postage by clicking the link below. All money (except postage costs) will go to the MND Association.
To whet your appetite here’s a sneak peek inside –
26 Miles is being turned into a book! We will be including the original 26 plus more people who’s lives have been affected by MND.
There will be some true luminaries including the pioneering robotics scientist Dr Peter Scott-Morgan who intends to use technology to “thrive” with MND. We visited him on Tuesday. An absolutely incredible man –
This project started as a quirky idea between a couple of friends. One of them, whose name is Miles, had recently been diagnosed with a type of MND.
We decided to find 26 people who’s lives had been touched by motor neurone disease. We’d interview and photograph them, then publish the pictures and edited interviews on Instagram one at a time over 26 days leading up to Cristian running the Tallinn marathon – yes a 26(.219) mile run. To truly live up to the name “26 Miles”, Miles appeared in each of the 26 photos too!
Here we are just after the idea was hatched back in 2015 –
We wanted to raise awareness about motor neurone disease and some money for the MND Association.
Now we are making 26 Miles 4 MND into a book that will be published next year during the 40th anniversary of the MND Association. It will include the original 26 photos plus several more people who are luminaries in the world of MND. In fact we’re just back from Torquay where we photographed a game-changing MND trailblazer. More about that on here soon.