The “South African David Beckham” with motor neurone disease.

Last Friday I took my dad, who’s a big rugby fan, to Telford because I’d heard on the MND grapevine that there was going to be a screening of “Glory Game” – the documentary that tells the story of South African Rugby legend Joost van der Westhuizen and his battle with motor neurone disease.

171015_114

In South Africa, Westhuizen is treated like a rugby playing David Beckham. I couldn’t help imagining how much quicker we’d find treatments and a cure for MND if, God forbid, David Beckham developed MND.

Joost van der Westhuizen was at the screening because the film is touring the UK during the Rugby World Cup. There’s a quote of his that stood out as being typical of the spirit of MND Warriors everywhere –

“They said I would be in a wheelchair after a year. They said I had a 20% chance to live two years. And I decided ‘stuff them’. I will decide when I go.”

He’s lived more than 4 years since being given that doom laden prognosis.

It was a great evening, a chance to meet up with some of the friends we’ve made during the 26 Miles 4 MND campaign so far and to meet more inspiring people who we hope to include in our 26 portraits.

These are some snaps from the night. (Click on the pictures to see them in a light-box).

Joost van der Westhuizen played as a scrum half for the South African rugby union team. He represented South Africa in 89 test matches, scoring 38 tries, and was a member of the victorious South African rugby team at the 1995 world cup. He’s patron of a South African motor neurone disease charity called the J9 foundation (scrum half normally wears a number 9 shirt).

If you’d like to help find treatments and a cure for motor neurone disease, click here for the “26 Miles” Just Giving page. Any amount, however large or small, will be greatly appreciated. 

Or donate via your mobile phone! – Text ‘mmnd99 £5.00‘ (or whatever you can afford) to 70070

The money we raise will go to the Motor Neurone Disease Association – the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

Thank you very much 🙂

Advertisements

2 thoughts on “The “South African David Beckham” with motor neurone disease.

  1. it makes no difference who is diagnosed with MND. David Beckham or the Queen of England. there is no cure! I’ve got the disease. 40 years and still waiting for that elusive breakthrough! Andy McGovern.

    Liked by 1 person

    1. Hi Andy. Thanks for your comment. After watching the film, I got the impression that generally people in South Africa (townships aside) are much more aware of MND and donate more to research etc than here in the UK because somebody as high profile as Joost has it. Where are you based? We are still open to new subjects for our portraits. It would be good to get a long term survivor. Let me know if you are interested. My email is miles.pilling@gmail.com
      Thanks.

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s